Beyond the pale: folklore, family, and the mystery of our hidden genes
Ouvrages documentaires canadiens, Auteurs canadiens (documentaires), Art de vivre
Audio avec voix humaine
Résumé
Like any new mother, Emily Urquhart is thrilled when her first child, a daughter, is born. Sadie is healthy and stunningly beautiful, with snow white hair and fair skin. Even the doctors and nurses can’t help a second look at… this magical child. But soon a darker current begins to emerge - something is amiss. After three months of testing, Sadie is diagnosed with a rare genetic condition, albinism. Part memoir, part cultural critique, and part genetic travelogue, "Beyond the Pale" is a brave, intimate investigation into the secret histories that each of us carries in our genes and an inspiring memoir about parenting a child with a disability - and building a better future for that child. 2015.