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Children with Complex and Continuing Health Needs: The Experiences of Children, Families and Care Staff
Par Jaqui Hewitt-Taylor. 2008
'Aimed at students and practitioners involved in supporting such children, and designed to give them an insight into what it…
means to raise a child with such multiple needs.' - Current Awareness Service 'This book draws on the experiences of a number of families to provide a valuable and deeply moving insight into what it means to raise a child with complex needs. It highlights both the joys and the challenges that families face. In doing so it raises important issues about how services in the UK are currently responding to children with complex needs and their families as well as pervasive disablist attitudes within society. This book will provide students and practitioners from a range of disciplines with a valuable window into families' lives and challenge them to reflect on how they are supporting them.' - Sue Kirk, University of Manchester, UK. Focusing on the real life experiences of children and their families, this book provides valuable insight into living with complex and continuing health needs. The author highlights the importance of seeing each child as an individual, with the same rights and needs as any other person, rather than defining them by their health condition. The book includes case studies to illustrate the experiences of children, parents, siblings and extended families, as well as professionals in health and social care. These personal accounts discuss both the challenges and the rewards associated with looking after a child with complex needs. The author also provides an overview of the support which is available in healthcare and education systems and makes recommendations for the future. Anyone who is responsible for supporting children with complex and continuing health needs will benefit from reading this book.The Self-Help Guide for Teens with Dyslexia: Useful Stuff You May Not Learn at School
Par Alais Winton. 2015
As Alais Winton knows, having dyslexia doesn't mean you're not bright; like her, you might just need a different way…
of looking at things. In this book, she lets you in on the learning techniques which work for her, and which you may not be taught at school. Offering solutions to common problems students with dyslexia face, Alais describes tried-and-tested techniques for succeeding with reading, spelling, memorising information and time management, and even a simple method to ensure you never misplace your learning tools (such as pencils and books) again. The strategies are ideal for use in the run-up to exams, helping you to become more organised, less stressed and better prepared. This is a must-read pocket guide for students with dyslexia aged 11 to 18, and will also be a helpful source of ideas for teachers, SENCOs and parents of teens with dyslexia.When teenagers with special needs transition from school to adult life, both they and their families are faced with many…
new decisions and challenges. This book provides advice and information to help families prepare for that transition, and make it happen as smoothly and seamlessly as possible. Mary Korpi recognizes the impact of this changeover period and emphasises the need for young adults to be included in all decisions and discussions about their future, thereby developing self-advocacy skills. The first part of the book explains how families can adapt everyday routines to develop the young adult's essential life skills. The second part provides information on programs and support services, and stresses the importance of devising an effective transition plan to help teenagers explore avenues suited to their personal goals and abilities. This is invaluable reading for families of teenagers with disabilities who are preparing to move on from school life.A Self-Determined Future with Asperger Syndrome: Solution Focused Approaches
Par E Veronica Bliss. 2008
A Self-Determined Future with Asperger Syndrome presents an empowering, practical approach to helping people with Asperger Syndrome (AS) to succeed…
at college, at work, at home and in life. The authors highlight how treating AS as a `problem' is unproductive, and advocate a solution focused approach which recognizes and uses the strengths of people with AS to foster mutual respect and understanding. Drawing on both their personal experience and knowledge of counselling, the authors use anecdotes and stories to show how people with AS cope in day-to-day situations. They also illustrate how effective communication and understanding of a person's needs and goals are key to improving daily life for people with AS. The final section of the book comprises practical worksheets and resources to help people with AS to recognize their achievements and work towards their goals. This book will be of interest to people who are affected by AS, their families, and the people who work with them.'The book is user-friendly and includes clear diagrams in each section, along with tables to outline key points. I found…
these very useful and they are an easy reference/ reminder, for example, they include a normal development chart, what assessments are available and their main aims.' - National Association of Paediatric Occupational Therapists Coordination problems often make everyday activities a challenge for children with learning disabilities. This accessible manual offers practical strategies and advice for helping children with coordination difficulties. The author explains how to recognize normal and abnormal motor development, when and how to seek help, and includes specific teaching strategies to help children with coordination difficulties succeed in the classroom, playground, and home. She describes a wide range of therapeutic methods and provides a comprehensive list of resources. Full of practical help, this is essential reading for anyone caring for, or working with, children with developmental motor concerns.Counselling People on the Autism Spectrum: A Practical Manual
Par Katherine Paxton, Irene Estay. 2007
The characteristics of autism spectrum disorders (ASD) present unique challenges, not only to people themselves affected, but also to counselling…
professionals. This manual provides counselling techniques that work not only for professionals, but also for individuals either coping with being on the spectrum themselves, or living with someone who has an ASD. Regardless of intellectual and linguistic ability, people on the autism spectrum often have significant impairments in emotional expression, regulation, and recognition, and they are known to have higher rates of depression and anxiety than the general population. This comprehensive book shows how to develop the tools necessary to help people on the spectrum cope with their emotions, anxieties, and confusion about the often overwhelming world that surrounds them. Illustrated with useful case studies, it covers a range situations where counselling may be helpful for individuals with ASD, both children and adults, families where a member is on the spectrum, and couples where a partner has ASD. It also addresses specific issues, including depression, anxiety, emotional regulation, social skills, and stress, with effective strategies for dealing with each issue. As well as being indispensable for counsellors, this book provides valuable information and advice for anyone working with people and families affected by ASDs.Individuals with Asperger's Syndrome (AS) benefit from a positive, affirming support of their individuality. This forward-looking book focuses on building…
individual strengths and resilience, rather than modifying perceived weaknesses, through individualized therapy within a group context. Integrating psychological and educational theory with a variety of creative therapies, Judith Martinovich combines activities such as art making, drama, music, puppetry, yoga and photography with conventional cognitive behavioral interventions to support individuals with AS. The different activities complement and reinforce each other and are designed to address specific traits of the autism spectrum to aid skills development. Although created primarily for use with adolescents and young adults, the practical and versatile activities can be adapted for different age and skill levels, objectives and settings. Informed by contemporary research, they meet the objectives of a framework of principles drawn from Positive Psychology and Social and Emotional Learning. Creative Expressive Activities and Asperger's Syndrome is a comprehensive resource for parents as well as teachers, social workers, psychologists and arts therapists who wish to link therapeutic goals with creative activities for people with or without Asperger's Syndrome.Join the Revolution, Comrade
Par Charles Foran. 2008
In this collection of essays, Foran visits places in Vietnam that have been 'colonized' by western war films, talks to…
Shanghai residents about their colossal city, and commiserates with the people of Bali about the effects of terrorist bombs on their island. He also 'encounters' Miguel de Cervantes, the Buddha of Compassion, and the pumped-up American Tom Wolfe.At Home in the Land of Oz: Autism, My Sister, and Me Second Edition
Par Anne Barnhill. 2007
Anne's sister Becky was born in 1958, long before most people had even heard of autism. Diagnosed with 'emotional disturbance,'…
Becky was subjected for much of her childhood to well-meaning but futile efforts at 'rehabilitation' or 'cure,' as well as prolonged spells in institutions away from her family. Painting a vivid picture of growing up in small-town America during the Sixties, Anne describes her sister's and her own painful childhood experiences with compassion and honesty. Struggling with the separation from her sister and the emotional and financial hardships the family experienced as a result of Becky's condition, Anne nevertheless found that her sister had something that 'normal' people were unable to offer. Today she is accepting of her sister's autism and the impact, both painful and positive, it has had on both their lives. This bittersweet memoir will resonate with families affected by autism and other developmental disorders and will appeal to everyone interested in the condition.Understanding Learning Disability and Dementia: Developing Effective Interventions
Par Diana Kerr. 2007
Understanding Learning Disability and Dementia covers all the essential issues in supporting a person with a learning disability when they…
develop dementia. Like the population at large, people with learning disabilities are living longer, and therefore an increasing number are developing dementia. Service providers, planners, doctors, social workers, carers and direct support staff need to be equipped with relevant knowledge prior to the onset of dementia, so that they can devise appropriate therapeutic interventions and coping strategies, including health and medication management and palliative care. This book will provide essential knowledge for anyone involved in the provision of services, assessment of need and direct care and support for dementia sufferers who also have a learning disability.A Will of His Own: Reflections on Parenting a Child with Autism - Revised Edition
Par Jane Asher, Kelly Harland. 2007
Kelly Harland's stories explore her son's life to the age of 14, and the new and unexpected universe she and…
her husband - both professional musicians - must learn to navigate with him. Will's fears, anxieties, and obsessions can dominate daily life, making a trip to the grocery store seem like a walk across a minefield. But amidst these unpredictable 'flip-outs' and 'freak-outs,' there are moments of wonder. When Will finally learns the give and take of conversation, or dreams about his future, it rekindles his mother's belief that anything is possible.Phoebe Caldwell's remarkable new book makes accessible for the first time the complex, intricate inner and sensory worlds of people…
whose learning disabilities are combined with autistic spectrum disorder and, often, difficult-to-manage behaviour. Based on many years of working with such people, many of whom have withdrawn into a world of their own, she explores the different sensory reality they experience, showing it to be infinitely more complex and varied than is widely understood. She introduces a practical approach known as Intensive Interaction, which uses the body language of such people - who have hitherto largely been regarded as unreachable - to get in touch with them, giving them a way of expressing themselves which shifts their attention from solitary self-stimulation to shared activity. The outcome is not only a marked improvement in behaviour and ability to communicate but, more important, many parents will say 'they are just much happier'. Covering not only the practical aspects of introducing this technique, but also the thinking behind it, this landmark book has much to say on behalf of a group that has in the past largely been denied a voice, and will open new avenues for both practice and research. It is invaluable for parents, carers, and all who work with this group.Exile and Pride: Disability, Queerness, and Liberation
Par Eli Clare. 2009
First published in 1999, the groundbreaking Exile and Pride is essential to the history and future of disability politics. Eli…
Clare's revelatory writing about his experiences as a white disabled genderqueer activist/writer established him as one of the leading writers on the intersections of queerness and disability and permanently changed the landscape of disability politics and queer liberation. With a poet's devotion to truth and an activist's demand for justice, Clare deftly unspools the multiple histories from which our ever-evolving sense of self unfolds. His essays weave together memoir, history, and political thinking to explore meanings and experiences of home: home as place, community, bodies, identity, and activism. Here readers will find an intersectional framework for understanding how we actually live with the daily hydraulics of oppression, power, and resistance. At the root of Clare's exploration of environmental destruction and capitalism, sexuality and institutional violence, gender and the body politic, is a call for social justice movements that are truly accessible to everyone. With heart and hammer, Exile and Pride pries open a window onto a world where our whole selves, in all their complexity, can be realized, loved, and embraced.This easy-to-read guide offers a complete overview of Nonverbal Learning Disabilities (NLDs) and the wide variety of symptoms that different…
types of NLD present. Maggie Mamen enables readers to select the most relevant strategies for coping with and managing their particular symptoms. She provides a wealth of practical advice on key skills such as developing written and verbal communication, understanding social clues, managing behaviour, self-regulation and improving organization. She also covers relevant teaching methods for the classroom. This practical and accessible introduction is an essential guide for those families and professionals working with children and adults with NLDs.Mammographies: The Cultural Discourses of Breast Cancer Narratives
Par Mary K. Deshazer. 2013
While breast cancer continues to affect the lives of millions, contemporary writers and artists have responded to the ravages of…
the disease in creative expression. Mary K. DeShazer's book looks specifically at breast cancer memoirs and photographic narratives, a category she refers to as mammographies, signifying both the imaging technology by which most Western women discover they have this disease and the documentary imperatives that drive their written and visual accounts of it. Mammographies argues that breast cancer narratives of the past ten years differ from their predecessors in their bold address of previously neglected topics such as the link between cancer and environmental carcinogens, the ethics and efficacy of genetic testing and prophylactic mastectomy, and the shifting politics of prosthesis and reconstruction. Mammographies is distinctive among studies of contemporary illness narratives in its exclusive focus on breast cancer, its analysis of both memoirs and photographic texts, its attention to hybrid and collaborative narratives, and its emphasis on ecological, genetic, transnational, queer, and anti-pink discourses. DeShazer's methodology--best characterized as literary critical, feminist, and interdisciplinary--includes detailed interpretation of the narrative strategies, thematic contours, and visual imagery of a wide range of contemporary breast cancer memoirs and photographic anthologies. The author explores the ways in which the narratives constitute a distinctive testimonial and memorial tradition, a claim supported by close readings and theoretical analysis that demonstrates how these narratives question hegemonic cultural discourses, empower reader-viewers as empathic witnesses, and provide communal sites for mourning, resisting, and remembering.Asperger Syndrome and Bullying: Strategies and Solutions
Par Nick Dubin. 2007
Bullying is a serious problem for people with Asperger Syndrome (AS), both at school and in the workplace, and displaying…
'different' behavior, such as not understanding social rules or hand-flapping, exacerbates the risk of being victimized. Writing in an accessible, informal style, the author describes the bullying behavior he and other individuals have experienced, and the effect this has had on their lives. He outlines the reasons for bullying behavior and the danger of persistent recurrence if it remains unchecked, as well as the critical importance of 'involving the bystander'. Nick Dubin goes on to provide a range of effective strategies to address bullies and bullying that can be applied by parents, professionals, schools, and individuals being bullied. He stresses the importance of peer intervention, empathetic teachers, and verbal self-defense, and shows how lack of support, condemning of 'tale telling,' or even blaming the victim reinforces bullying. This book offers individuals with AS who are being bullied the opportunity to see that they are not alone, and it is an invaluable source of advice for parents, teachers, professionals and personnel managers.Assessing Children's Needs and Circumstances: The Impact of the Assessment Framework
Par Al Aynsley-Green, Steve Walker, Hedy Cleaver. 2004
Drawing on in-depth interviews with social workers and their managers, and families and young people themselves, the authors of this…
important book show how the principles embodied in the Assessment Framework have been applied to social work practice. Revisiting the principles outlined in the legislative context and the Assessment Framework, they show how the focus on assessment has affected the work with children, and the experiences of children and families themselves. The authors identify a range of issues that influence the implementation of the Assessment Framework, including the key areas where support and training are needed. They review social workers' and other professionals' appraisal of how the Assessment Framework affects individual practice and inter-agency collaboration, as well as exploring how satisfied young people and their parents are with the assessments they are involved in. Finally, they examine the cost to social services of undertaking a core assessment. Emphasising the importance of a joined-up child care service, the authors' findings have been taken into account in the development of the Integrated Children's System. This book should be read by all those professionals who are working to promote the welfare and well-being of children.Revealing the Hidden Social Code: Social Stories (TM) for People with Autistic Spectrum Disorders
Par Marie Howley, Eileen Arnold. 2005
The Social Stories(TM) approach is widely acknowledged as a key technique for teaching social and life skills to children with…
autistic spectrum disorders. This text, endorsed by the originator of Social Stories(TM), Carol Gray, offers clear and comprehensive guidance for professionals, parents and carers on how to write successful and targeted Social Stories(TM) that will help develop the autistic spectrum child's understanding of social interaction. The book outlines the kinds of social challenges that people with ASD may experience and highlights the importance of learning social skills in meaningful contexts. An extended review of the guidelines for writing Social Stories(TM) will help writers to structure and develop their stories. The authors explain the key elements and highlight the potential difficulties that a writer may encounter, while providing encouragement and guidance through the various stages of what is often a challenging process. They include examples from their own professional experience, and suggest ways in which the Social Stories(TM) approach may enhance other strategies. Helpful advice on presentation and implementation is provided. Revealing the Hidden Social Code is essential reading for any professional, parent, carer or teacher wanting to employ Social Stories(TM) to develop social understanding in people with ASDs.Career Success of Disabled High-flyers
Par Sonali Shah. 2005
'Disabled people can be seen pejoratively as a homogenous group that are typically "weak" and "needy" and thus unable to…
undertake the rigours of professional care work. Shah also notes that disabled people are often wrongly assumed to have a high level of absences from work and to be thought generally less capable. Such discriminatory attitudes must be set aside. Disabled people are first and foremost people and will have a contribution to make to the professions, not least because of the invaluable problem solving skills they acquire in having to overcome everyday problems that many of us take for granted. Shah's book will hopefully provide inspiration for disabled professional staff, students and service users and show that equality and success are achievable for disabled people.' - Journal of Interprofessional Care 'Practitioners working in many settings with people with dementia are likely to find this book presents new ideas but it would also be relevant to those working in rehabilitation services who do not, as yet, see people with dementia as key "clients".' - Journal of Interprofessional Care 'They are actors, clerics, managers, journalists, financial advisors, instructors, athletes and developers of athletes, and educators. One is a member of parliament. Another is a dancer. Shah (sociology and social policy, Nottingham U.) interviewed 31 successful people with disabilities and found their influences, motivations, goals, and perceptions varied from individual to individual, and depended on family expectations, education, individual personalities, and career choices. She also found they differed in what they perceived to be success, how well their employers treated them, and how they handled failure. Shah's conclusions include the ideas that career development is important, that those who seek suitable role models and coping strategies, and that integration of schools should include everyone.' - Book News 'By examining subjective factors like ambition (determination, response to disability and personal definitions of success) alongside objective measures (educational achievement, social status and financial success), Shah provides a useful framework for us to look at how all disabled people can be integrated into mainstream societyâ?¦ Instructive for anyone who works with disabled people in education, employment and society in general, this book is a through piece of social research.' - Community Care 'This is a detailed and thought-provoking book that looks at the influences on, and the experiences of 31 successful disabled adults. It is the product of a PhD research project and the author herself is a disabled personâ?¦ Career Success of Disabled High-Flyers should be used to inform educational and employment policy and practice. It provides role models for aspiring young people and other disabled adults and I recommend this book to teachers, guidance providers, employers and in fact anyone who is looking for an intelligent and well researched account of the experience of disabled people and factors relating to their success.' - Newscheck Career Success of Disabled High-Flyers challenges the assumption that disabled employees are a homogenous group and discusses important questions such as: What is disability? How do people with physical impairments define success? Does gender impact in the same way on disabled and non-disabled people's careers? Drawing on in-depth case studies of thirty-one disabled adults who have been successful in their careers, this book suggests that individual traits and patterns of behaviour are key factors in career success, and shows that it is often society rather than impairment that hinders professional progression. Providing role models and valuable insights for young career-minded disabled people, it will also help inform policy and practice in education and training about disability and equality in schools, employment, and society in general. This book is a must-read, not oChildren, Youth and Adults with Asperger Syndrome: Integrating Multiple Perspectives
Par Kevin Stoddart. 2005
This book offers a comprehensive overview of clinical, research and personal perspectives on Asperger Syndrome, including contributions from parents and…
experts in the fields of psychology, social work, psychiatry, genetics, sexology and vocational counselling. It includes first-hand accounts from adults with AS, highlighting their difficulties in areas such as social competence and education. Specialist perspectives on AS, including sexuality and relationships, finding and keeping employment and anxiety and depression are sensitively addressed. The viewpoints of parents explore experiences of parenting AS individuals. These varied approaches to living with AS complement the emerging literature on theory, research and practice in this area. The broad scope of Children, Youth and Adults with Asperger Syndrome guarantees a wide readership among practitioners, students, parents, young people and adults with AS, educates service providers how to assist people with AS and suggests a model of interdisciplinary collaboration for administrators and funders.